iggy mum Posted August 6, 2017 Share Posted August 6, 2017 Is there anyone on the forum that has had experience with a dog that has/had syringomyelia? I'm concerned that one of my dogs may have it. The vet thinks it's plausible but I would like to discuss this disease with someone experienced so I have more information before I consider what I need to do next. Any help/info would be appreciated. Link to comment Share on other sites More sharing options...
Dogsfevr Posted August 6, 2017 Share Posted August 6, 2017 Contact the Cavalier club of Victoria .They would be able to discuss anything relating to this issue Link to comment Share on other sites More sharing options...
iggy mum Posted August 6, 2017 Author Share Posted August 6, 2017 I did but the person who replied to me said they couldn't offer any advice to me and to see my the specialist vet for diagnosis. They obviously weren't interested in talking to me. Link to comment Share on other sites More sharing options...
Pjrt Posted August 6, 2017 Share Posted August 6, 2017 (edited) Oh what a shame. I do do know that the symptoms can be variable. Just because a dog isn't screaming or habitually air scratching etc, doesn't mean it isn't present. I believe the only definitive diagnosis is an MRI. And the scan needs to be read by someone who knows exactly what to look for. I have handled several CKCS that have gone on to have a diagnosis or have had symptoms consistent with malformation. One had flycatchers. It's so so sad. Good luck. @Rappie may have some idea of where you could get advice. Edited August 6, 2017 by mingaling Link to comment Share on other sites More sharing options...
Dogsfevr Posted August 7, 2017 Share Posted August 7, 2017 The Cavie club advice is correct you need to see a specialist vet for a confirmed diagnosis & that option isn't cheap but if you want an answer that is the one that will be true . 1 Link to comment Share on other sites More sharing options...
Chloe08 Posted August 7, 2017 Share Posted August 7, 2017 I was concerned about my cavalier displaying symptoms and found a Facebook page for people with dogs with this condition. It was helpful and you can get advice from other people. 1 Link to comment Share on other sites More sharing options...
iggy mum Posted August 7, 2017 Author Share Posted August 7, 2017 Chloe08, do you know the name of the group? Link to comment Share on other sites More sharing options...
Chloe08 Posted August 7, 2017 Share Posted August 7, 2017 Hi i think it's syringomyelia in dogs a place for help and advice. 1 Link to comment Share on other sites More sharing options...
iggy mum Posted August 7, 2017 Author Share Posted August 7, 2017 Thanks Chloe08, I will have a look on facebook for this group. I already knew that an MRI is the only way to confirm a diagnosis and I know where I need to go to get one done. I also know what treatments are available, What I wanted is to discuss experiences with someone that has had a dog with this awful disease. Link to comment Share on other sites More sharing options...
Rappie Posted August 11, 2017 Share Posted August 11, 2017 It sounds like you have most of the factual information that you require. I have been involved in the treatment of a couple of cases after diagnosis with a specialist but not had other personal experience with affected dogs - hopefully you will find a discussion / FB group with owners that have. Link to comment Share on other sites More sharing options...
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