Yeah, after a talk yesterday, the boyfriend and I are gathering all his medicial history and xray and we are going to start asking people for second opinions now. Sash are great but everytime we go in there, we always comes home a little flat and more confused.
I actually have a friend who works at Specialist Centre at Strathfield, whom is interested in Charlie's case. Also a few other people have suggested and referring us to a few other specialist too.
Good luck Charlie is lucky you care so much.